Thursday, May 12, 2016

5/12/16 update


YES!!  The fourth biopsy came back the same as the first three.  0 NSR.  Zero No Significant Rejection.  Now we have biopsies only every two weeks.  We do have two scheduled visits to the UWMC next week.  One with Dr. Smith, the surgeon and one with Heidi, the Physician's Assistant.  We like them both. 

The other benefit of the biopsy is that the prednisone dose has been officially lowered.  Maybe it will help me to sleep better.  Sleep has been intermittent and restless.  There is also some crankiness and increased appetite.

We had our monthly heart transplant support group meeting today.  We had a representative from Life Center Northwest come talk to us, the subject was communication between the organ recipient and the donor family.  It was very interesting.  It is up to the donor family whether there will be a meeting.  It is recommended that we wait about a year before we send the first letter.

We found a band aid on John's back tonight, probably from the pigtail removal last week, so that came off.  Also removed some adhesive from his back.  We must have been focusing on the front, so didn't notice it.  Co still packs the driveline hole nightly.  It is getting smaller every day.

Co mowed the lawn this week and we planted nine vines today.  John is not supposed to get into the dirt now, so puts on a really tight special mask and gloves when he does work outside.  So he was able to fertilize the lawn.

Colleen and John

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