4.02.2016 update

We missed a heart last night.  The call came and we didn't hear the phone the first time at 12:20 am.  The second and third times there was no one on the line.  On the fourth call John could barely hear someone asking for him.  He said he couldn't hear so she did something to her phone and then she came through clearly.  Kathy from the UWMC heart transplant team said to bring all eight LVAD batteries and check into the ER entrance at UWMC to get ready for a morning transplant.  We cried.  We dressed and then she called back and told us that so much time had elapsed since they first tried calling (roughly 20 minutes) that the Doctor offered the heart to the second in line.

The Doctor called in the morning to ask what went wrong so it wouldn't happen again.  We since have moved the phone from the Master bath to the nightstand and changed the order in which they would call.  They had called both cells before the house phone.  Our cell phones live in the office which is in the opposite end of the house.

We can say that it wasn't meant to be.  We have been waiting almost seven years and are really  compliant about what we are told.  But we didn't hear the phone.  We are feeling a huge loss now and are grieving.

Colleen & John